A naive question, maybe? I have about 5 years worth of CT, MRI, and PET data of my diagnosis (stage iv colon cancer) - to NED. I wouldn’t care about contributing it to any research if there was some way of anonymizing it. Or, does that kind of data automatically get contributed somehow? Some of the imaging was UCSF and some at Memorial Sloan-Kettering in New York.
Data would not get automatically contributed to research unless you explicitly gave informed consent for research studies. All researchers now require to maintain official records of informed consent given by patients or research participants. You could anonymize your data via DICOM anonymizer tools and offer them to UCSF or Memorial Sloan Kettering [or] you could host them on a website and offer to sign informed consent documents for researchers.
